Andrew Anderson suffered from Tay-Sachs disease, an ultrarare fatal genetic disorder with only 16 cases annually nationwide. Andrew passed away at just 4 years old. Since then, Andrew’s parents Florida Representative Adam Anderson (R-Palm Harbor) and Brianne Anderson and their family have been leading the drive to advance research in rare diseases here in Florida and across the nation.
The Institute for Pediatric Rare Diseases stands as a tribute to Andrew’s Story and the dedication of a father to do everything possible so that no other child or parent must feel helpless when faced with a rare disease diagnosis.
